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Why the GSA?

Every person living with Gorlin syndrome has a story — one that can inspire, educate, and bring hope to others. By sharing your journey, you help build understanding among patients, families, and the medical community. Your voice helps others feel less alone and reminds the world that Gorlin syndrome is more than a diagnosis — it’s a story of courage, resilience, and connection.

Donations by check may be sent to:

Gorlin Syndrome Alliance
3005 S. Lamar Blvd
Suite D109 #264
Austin, TX 78704

The Gorlin Syndrome Alliance is a 501 (c) (3) nonprofit organization.  (EIN# 34-1915691).