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Join our work as we aim to discover better treatments and ultimately, a cure.

Get the information you need to best manage Gorlin syndrome.

Help your child with Gorlin syndrome thrive through all their ages and stages.

Explore the different signs and symptoms of how Gorlin Syndrome may affect you.

Living with Gorlin Syndrome

Gorlin syndrome is a complex and rare disease and knowledge about its management is not widespread among health care providers.

Living with Gorlin syndrome can be challenging. We’ve created the following resources to help people with Gorlin syndrome live well and thrive.