Community Groups

GSA Support Groups

These support groups are facilitated by a professional psychologist who focuses on the mental health impact of rare disease. Dr. Al Freedman. The GSA will host two groups, one for adults living with Gorlin syndrome and one for caregivers, parents, guardians and partners.

Please subscribe to our newsletter to receive notifications about meeting dates and times groups in 2026.

First Meeting Dates:

January 14 at 1 PM EST – Support Group for caregivers, parents, guardians, and partners
January 15 at 1 PM EST – Support Group for adults living with Gorlin syndrome

First Meeting

2/10/26- Parents
2/17/26- Women
2/26/25- Affected Adults

Second Meeting

5/5/26- Parents
5/12/26- Women
5/21/26- Affected Adults

Third Meeting

8/4/26- Parents
8/11/26- Women
8/20/26- Affected Adults

Fourth Meeting

11/10/26- Parents
11/17/26- Women
11/19/26- Affected Adults

Community Groups

The GSA also offers quarterly community group meetings! These are peer-led groups, with an open discussion format. This invaluable opportunity helps you build connections with others who truly understand the emotional and physical aspects of Gorlin Syndrome.

You may view the existing community group opportunities below. Please link to our calendar and register for community groups below. If you would like to suggest a new community group, you may email us at info@gorlinsyndome.org

All dates below are subject to change based on moderator availability and event determinations – please register and subscribe to our newsletter to make sure you receive updates and notice of any changes.