The staff at the BCCNS Life Support strives to advance research to saves lives and significantly enhance the quality of life for people living with the manifestations of BCCNS. The research we’ve supported has helped identify treatments to improve the quality of life of individuals. We continue to support this research because we know there are still people struggling on their medical journey.
We work with world-class scientists who are equally dedicated to our goal of creating a brighter future for people living with BCCNS. To expand the impact of our efforts, we push the government to fund the research that will improve and save lives. Further, we facilitate the sharing of knowledge about BCCNS through conferences, symposia, and partnerships with governmental agencies and other health organizations. We continue to move forward research for the syndrome and its manifestations.