Board of Trustees

Kristi BurrKristi Schmitt Burr

Executive Director, Ohio

Kristi Schmitt Burr has served as the Executive Director, as well as a member of the Board of Trustees, of the BCCNS Life Support Network since its inception. Kristi was born in the Cleveland area and has spent much of her adult life in rural Ohio. She attended Grinnell College in Iowa and Kent State University in Ohio. Kristi has two children: Hans, an attorney in Massachusetts, and Sarah, deceased. She and her husband, Jeff, have been married for over twenty-five years and enjoy farming and agriculture. In addition to the BCCNS Life Support Network, Kristi has been involved with many other non-profit organizations and boards including the Genetic Alliance, WVIZ, WCPN, Ideastream, American Cleft Palate Craniofacial Association, Coalition of Skin Disease (Elected President 2014-15), National Organization of Rare Disorders, and the Commission on Dental Accreditation.

 

Julie Breneiser

Julie Breneiser

President, Pennsylvania

Julie Breneiser joined the Board of Trustees in 2010. She is as an Assistant Teacher to children with severe disabilities, and for many years worked as a Physician Assistant. Julie feels that her work with the Basal Cell Carcinoma Nevus Syndrome Life Support Network has the potential to improve the quality and quantity of the lives of her young adult children, as well as other affected individuals. This is very important to her. As President of the Board, Julie has lectured to dental students, worked to raise funds for the Network, reviewed research proposals for the NIH and the Department of Defense. She is a member of the External Advisory Board of the Penn State Hershey Medical Center Melanoma and Skin Cancer Center. Along with traveling, reading and exercising Julie enjoys volunteering at her local library. She lives near Reading, Pennsylvania with her husband, daughter and son. Julie and her children have BCCNS.

 

GullattKevin Gullatt

Texas

Kevin Gullatt is the Director of Risk Management for a private family in Fort Worth, TX overseeing all elements of their personal and commercial holdings.  He received his B.A. from Texas A&M University, an MBA from the University of Texas at Dallas and a J.D. from the University of Tulsa.  Prior to his current position, he served as in-house counsel for ConocoPhillips in Bartlesville, Oklahoma.  It was while living in Oklahoma that he and his wife, Christen Gallemore Gullatt, gave birth to twin sons, Patrick and William, who was diagnosed with BCCNS in May, 2008.  Also at that time, Kevin served on the Washington County Post-Adjudication Review Board overseeing cases involving deprived children as well as the Ray of Hope Advocacy Center Board of Directors.  He currently serves on the Board of Directors for One Safe Place, a victim’s advocacy center, in Fort Worth.  He and his family are members of the Fort Worth Presbyterian Church.

 

RainenMike Rainen

Kansas

Mike joined the Board of Trustees in 2010. He is the owner of Rainen Companies, Inc. Mr. Rainen serves on many Boards in his local community. Mikes’ involvement has helped propel the efforts of the Network in research on BCCNS forward.  He and his wife, Kathy, reside in Mission Hills, KS. They have two daughters, Piper and Lauren, the former is affected with BCCNS.

 

WeissMeredith Weiss

Texas

Meredith Weiss is a partner at a boutique law firm in Austin, Texas, where she counsels clients through end-of-life issues and estate planning. Earlier in her career, she litigated personal injury and toxic tort cases, and even further back, worked as a behavioral therapist for children on the spectrum. Meredith is a graduate of San Diego State University and Baylor Law School. She and her husband, Jesse, have three children, one of whom has been diagnosed with the syndrome. Meredith volunteers her time through the Town Lake Y.M.C.A. board, Legal Aid of Central TX, as well as the P.T.A. and Campus Advisory Committees at her children’s schools. Occasionally, she runs distance races and plays banjo, though usually not at the same time.

 

WerkmeisterJennifer Werkmeister

Wisconsin

Jenni is a member of the BCCNS Life Support Network, band-aid buddy founder, a dance partner with the condition that is BCCNS, and a medical professional, she’s been applauded for the support that she providers to others in the Network, in her personal and professional life. When she’s not working as a Licensed Practical Nurse, you can find her enjoying life, laughing at the small things, spending time with friends and family, being on a motorcycle or in a boat, taking pictures, offering an ear or shoulder to someone in need, answering calls from others affected by BCCNS who need to talk or have a question.

Jenni was born in Toledo, Ohio has lived in Michigan, Illinois, and now for the past 25 years lives in northern Wisconsin with her husband Jon and their dog Booker. Attended High School at Northland Pines HS, and obtained her LPN at Nicolet Technical College both in Northern Wisconsin. She looks forward to many more years of enjoying life, dancing the dance of BCCNS as graceful as possible and sharing her knowledge with all for all her years to come.

 

GinnBill Ginn

Emeritus

Bill was born in 1923 in Philadelphia, Pennsylvania. He served in the US Army (enlisted) where he met his wife, Arlene (then an officer). He married Arlene (now deceased) in 1945 and they had four children (Anna, William, Randall, David). Bill also has ten grandchildren. Bill attended Bates College and Yale Law School. He is a retired partner of the Cleveland law firm of Thompson Hine LLP. Bill has been on the BCCNS Life Support Network’s Board of Trustees since helping to found it in February, 2000. Bill has a passion for the organization and its members. Unlike our other Board members, Bill is not affected with BCCNS, nor is anyone in his family. Bill became involved with the organization when approached by a long-time family friend, Kristi Schmitt Burr. With financial support and encouragement from Kristi’s parents, Wilbur and Eleanor Schmitt, Bill & Kristi incorporated the BCCNS Life Support Network. Bill has attended all the annual retreats, as well as hosted numerous regional functions at his home in Chesterland. Along with BCCNS, Bill also serves as a Trustee or an Honorary Trustee of many other local non-profits including: Vocational Guidance Services; Eliza Bryant Center; Chagrin River Land Conservancy; The Nature Conservancy Ohio Chapter and Hopewell Inn. Bill also has a great love of nature and preserving land. Bill was instrumental in enabling the Geauga Park District to establish the 900 acre West Woods Park. The drive entering the West Woods bears his name.

 

BradleyBryant Bradley

Emeritus, Texas

Bryant Bradley has served as the President of the BCCNS Life Support Network for the past 6 years. Born in New York to an Army Colonel, Bryant was an “Army brat,” moving around a lot and living in Alaska, California, Hawaii, Kansas, Tennessee, Texas, and Washington. After graduating from college, she met her husband, Ren, while both were working at Milledgeville State Hospital in Georgia. They were married in 1974 in Savannah, Georgia. Five years later, their daughter, Nina, was born. Both Ren (now deceased) and Nina have Gorlin Syndrome. Bryant worked as a social worker for abused women and children; she retired in 1993 but has stayed active, writing grants for various agencies across Georgia and delivering food for the homeless and senior citizens 6 days a week. In addition to being President for BCCNS LSN, Bryant also serves as Secretary for the Georgia Domestic Violence Shelter.

 

Joyce RancourtJoyce Rancourt

South Eastern Michigan

Joyce Rancourt, originally from Cleveland Ohio, currently resides in South Eastern Michigan. Joyce earned her BFA in art from The Cleveland Institute of Art where she met her husband, Robert. They have two children, Lillian and Audrey. Audrey is the only family member affected by BCCNS. Although she is a stay-at- home mom, Joyce has taught adult and children’s art classes in both Ohio and Michigan. Joyce enjoys spending time helping at her children’s school and gardening.