Syndrome de Gorlin (France)
Syndrome de Gorlin is a non-profit organization dedicated to bringing together as many people as possible to support themselves, exchange experiences and knowledge about the BCCNS and available treatments.
BCCNS Global Network Group Germany
Our Organization was established February 15, 2011. Our main objective is to inform and educate people about the genetic medical condition known as Basal Cell Carcinoma Nevus Syndrome (also known as Gorlin~Goltz Syndrome or Nevoid Basal Cell Syndrome.)
We would like to raise awareness and provide effected persons and their families with the knowledge and assurance that “They Are Not Alone.” Therefore, we are more of a family than a group.
Basaliome-Gorlin Goltz e.V.
Postfach (mailbox) 1205
The Australian Gorlin Syndrome Mutual Support Group
The Australian Gorlin Syndrome Mutual Support Group has representatives in New South Wales, South Australia, Queensland and Victoria. Whilst giving each other mutual support we also spread awareness of the condition through Dermatology Conferences, Rare Diseases Events and the Genetic Services Networks. Some meet regularly for coffee, others get together for lunch on a regular basis. Members in South Australia started “Gorlin Syndrome In and Beyond Australia” on Facebook and a Microbiologist in the group started “Gorlin SyndromeAustralia Blog” Please visit our website for more information: www.gorlinsyndromesupportaustralia.weebly.com
The Gorlin Syndrome Group
The Gorlin Syndrome Group is a support network offering guidance and information to patients, their families and carers whose lives are affected by Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome).
The group is organised by patients affected by Gorlin Syndrome and their families, with support from medical advisors.
Our aims and objectives are:
- to offer guidance and information to individuals, their carers, family and friends with Gorlin syndrome
- the advancement of the education of the medical profession into Gorlin syndrome and its implications for the family
- to promote research into the causes, effects, treatment and management of Gorlin syndrome.