Patient recruitment is starting for Pellepharm’s Phase III Patidegib Topical Gel 2%. The BCCNS Alliance is working closely with Pellepharm and maintains the most up-to-date list of clinical sites. Click here for more information about the trial and site locations.
The fourth annual Fall Smoke Out Truck and Tractor Pull on September 29, 2018 in Cadiz, OH, was a major success for raising awareness of the BCCNS Alliance and supporting its programs and services. Zack Jones, cancer survivor and creator of the event, highlights a different form of cancer each year the event is held. […]
A message from Julie Breneiser, BCCNS Alliance President Dear BCCNS Alliance Community, The strides we have made this year are tremendous and provide further optimism for the future. One of the most important lessons of 2018 is the critical nature of data, i.e. who has BCCNS/Gorlin Syndrome. This data (the knowledge that you are out there!) […]
It’s about 8 o’clock and my day is starting to wind down. I’m sitting on the couch, relaxing and getting ready to watch some football and scroll through my iPhone. The youngest of my three kids pops her head into the family room and sees me nestled under a fleece blanket. Next to me is […]
News Alert – Review the Patidegib 2% Topical Gel Clinical Trial Posting Pellepharm’s Phase III Clinical Trial for Patidegib Topical Gel 2% just posted to ClinicalTrials.gov Patient recruitment for Pellepharm’s Phase 3 Patidegeb Topical Gel 2% is not currently active since the site locations cannot be published until contracts are signed and official. The BCCNS […]
Pan Foundation – Financial assistance for basal cell carcinoma treatment
“Fear of failure seems to be larger than the fear of fatigue.” My parents knew a few things at the beginning of my life. That sports were not exactly my strong suit and that I was born with Basal Cell Carcinoma Nevus Syndrome (BCCNS). The two, in my opinion, have been conquered together. Although I knew […]