Basal Cell Carcinoma Nevus Syndrome is also known as:

NBCCS - Nevoid Basal Cell Carcinoma Syndrome, Gorlin Syndrome, Gorlin-Goltz Syndrome, and BCNS - Basal Cell Nevus Syndrome

BCCNS Life Support Network:

Our Purpose:

• To provide healthcare, counseling, and support services to children and adults manifesting inherited, metabolic, or genetic disorders and diseases most commonly known as Basal Cell Carcinoma Nevus Syndrome ("BCCNS"), with particular focus on early diagnosis, and treatment of children evidencing the initial onset of BCCNS.

• To develop information about the medical conditions and disorders experienced by those living with BCCNS; to share this information with clinics and health care providers treating BCCNS patients, and other similarly affected populations; and to undertake a collaborative approach to the diagnosis, treatment, prevent and cure of the inherited, metabolic or genetic disorders encompassed in BCCNS.

• To provide a supportive environment for families to seek treatment for their children and other family members , and to train physicians, nurses, and other healthcare providers to communicate more effectively with families with BCCNS patients, and other similar affected populations.

We will provide: children and adults manifesting BCCNS, and their families with:

• Referrals to specialists and/or healthcare facilities most able to diagnose and treat effectively the disorders and diseases encompassed in BCCNS;

• Individual and group support and counseling designed to assist families in coping with BCCNS;

• Opportunities to meet, communicate and network with similarly situated children and their families at Network sponsored events including multimedia presentations and means of communication;

• Education, resources and research about the inherited, metabolic, and genetic diseases known as BCCNS, and similar or allied disorders.

Our Online Forum:

       Visit our Online Forum to see what our members are talking about, and while you're there why not share some of your thoughts and/or concerns with us. 

Our Sunday Night Chats:

          Everyone is also welcome and encouraged to join our Sunday Night Chat which starts every Sunday evening at 8:00 PM (Eastern Time), and generally lasts for about two hours.