Events

The Network has a variety of events, fundraising activities, and gatherings throughout the year. From here, you can see past and present events that are of interest to patients with the syndrome, as well as their families, friends, and medical providers. This includes meetings, fund raisers, upcoming research studies, and medical breakthroughs. Some event documents are in PDF format - to get a free PDF reader, click here.

Events Board

Date

Event

Location

May 5-8, 2010 Society for Investigative Dermatology
Annual Meeting
Atlanta, GA
May 15-19, 2010 American Academy of Oral & Maxillofacial Pathology
Annual Meeting
Tucson, AZ
June 30 - July 4, 2010 Regional Meeting Bois Blanc Island, MI

Past Events

April 12-15, 2010 Commission on Dental Accreditation
UNC Site Visit
Chapel Hill, NC
March 13, 2010 Annual Fund Raiser Willoughby Hills, OH
December 5, 2009 Jingle Bells for Basal Cells Bartlesville, OK
September 26, 2009 Wine Tasting Chesterland, OH
Sept. 18-19, 2009 Chicago Meeting Chicago, IL
 
 

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Reliance on any information provided on the site is at your own risk. Always seek the advice of a qualified health care provider with any questions you may have about your condition.