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Basal Cell Carcinoma Nevus Syndrome Life Support Network
Advancing Awareness. Finding a Cure.
BCCNS Life Support Network is dedicated to providing support services, counseling, and health care
advice to children and adults who manifest the rare genetic disorder known as Basal Cell Carcinoma Nevus
Syndrome (BCCNS). This support includes . . .
- Individual and group support and counseling designed to assist families in coping with BCCNS.
- Opportunities to meet, communicate, and network with similarly situated children and their families at
Network-sponsored events, including multimedia presentations and other means of communication.
- Referrals to specialists and/or healthcare facilities most able to diagnose and effectively treat the
disorders and diseases encompassed by BCCNS.
- Education, resources and research about the genetic disorder known as BCCNS, and similar or allied disorders.
The Network strives to develop information about the medical conditions and difficulties experienced by those living with
BCCNS. This information can then be shared with clinics and health care providers who treat patients with BCCNS and
other, similar disorders in order to foster a collaborative approach to the diagnosis, treatment, prevention, and
cure of the disorders encompassed by BCCNS.
We will provide a supportive environment for families to seek treatment for their children and other family members,
and to train physicians, nurses, and other healthcare providers to communicate more effectively with BCCNS patients and
their families, as well as other similarly affected populations.
What is BCCNS?
Also known as Gorlin Syndrome, Gorlin-Goltz Syndrome, Basal Cell Nevus Syndrome, or Nevoid Basal Cell
Carcinoma Syndrome, BCCNS is a rare genetic disorder that affects all systems of the body and makes affected
individuals more susceptible to various forms of cancer—especially basal cell carcinoma, a form of
skin cancer. For more general information about the syndrome, visit our page about the
syndrome. You can also visit our sister site, which provides a
more in-depth look at BCCNS.
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